Posted in Archive, May 2013

Inquisitive Nature

Two of the most common questions people ask each and every day are how and why. Why do people get ill? How do we know that colour is actually green? Why is it always me? How does this work? Sometime we are not seeking an answer when we ask these question and the question has been asked in rhetorical way e.g why me. However the majority of the time we are seeking an answer. As humans, like the majority of animals, our own nature makes us inquisitive, we like to know the ins and outs of everything and anything, but if you put us in a situation when we cannot find an answer, well then we become fixated.

Which is exactly what is happening to me now. I am completely fixated on what caused my Dystonia, what turned my whole world upside down gave it a good shake and then righted it with all the pieces jumbled up! The logical side of me knows that the chances of me finding out why is extremely small, yet still I try to work it out. I sift through pages and pages of information grasping at any small shred that could contain the answer I’ve been looking for.

No matter how often I tell myself that an answer is not going to make much of a difference, I still continue my search. I am almost amused at myself for how desperate I am for an answer. For even when I find the answer, other than it giving me some piece of mind, it is not going to change much.  However until the doctors agree to help me, I know that I shall keep looking, so that if the day comes when there is no answer, I can sit back and think well at least I tried.

For now though I am going to try to reign in my inquisitive self, and remind myself to spend less time looking for something I may never find and more time enjoying the wonders around me.

Posted in Archive, May 2013

GABA and Dystonia

I often view The Dystonia Society’s website to check out the latest information on research, treatment and more. The other day I started reading an article on their website entitled The Basal Ganglia and Dystonia. It was an extremely intriguing article and for those of you who have not read it yet I suggest you do http://www.dystonia.org.uk/index.php/about-dystonia/dystonia-and-the-basal-ganglia .

The section that interested me most was on the role of GABA in Dystonia. At the moment the medical society think (but have yet to prove) that a shortage of an inhibitory neurotransmitter such as GABA could have an impact on Dystonia, as it seems that Dystonia is a failure due to inhibition. Many patients, myself included, who suffer from Dystonia are sometimes put on medications such as Gabapentin, Baclofen or Benzodiazepines. All of these medication increase the amount of GABA in the brain.

I was extremely interested to read this as I currently take both Gabapentin and Baclofen and have found both to have incredible effects on my spasms. The Gabapentin felt like a miracle drug when I was first put on it as has had a huge positive impact on my full body spasm and on my eyes! The Baclofen at the moment is having a fantastic effect on my neck spasms as well other spasms.

So I cannot help but wonder if I have found the answer I have been looking for to why I have Dystonia! I know that I will have to wait until the medical society have managed to prove if this theory is correct, but I cannot help but feel slightly excited. I am always trying to understand why I have Dystonia, and to have an answer would give me peace of mind. I may have a long wait ahead of me but I shall be keeping my fingers crossed.