Tag: disability blog

Posted in Archive, march 2024

Health’s Expiration Date: Why Accessibilty Shouldn’t Be An Afterthought

Posted on by dystoniaandme

Health is often discussed in a way that would imply it is a given untill old age. It is a mindset that is flawed and dismissive of the many factors that can impact our health at any age. It ignores genetic predispositions, accidents and injuries, age related complications, conditions that develop with unknown causes, complications caused by other illnesses e.g stokes, etc.

It is necessary for there to be a shift away from the idea that health is a given, to one where it has an expiration date. With that viewpoint in mind, I ask why does society remain as inaccessible as it currently is? The majority of us will, at some point in our lives experience a level of disability. Despite this accessibility across the board is not where it needs to be to make life equally accessible for all.

Health expires, so why does accessibility remain an afterthought?

Posted in Archive

International Wheelchair Day 2024

Posted on by dystoniaandme

Wheelchairs are often associated with frailty, illness, and vulnerability, but they serve as valuable tools that offer freedom of movement and independence, liberating individuals from limiting circumstances. They are remarkable aids that significantly enhance the lives of those who use them.

Access to an electric wheelchair has had a positive impact on my quality of life. After experiencing frequent dislocations from using a manual chair, the electric wheelchair has allowed me to move around independently and safely, factors which cannot be stressed enough as to their importance.

As technology continues to advance, the future looks promising for wheelchairs, and I am eagerly anticipating the developments to come.

Posted in Archive, march 2022

Reflecting on Side Effects

Posted on by dystoniaandme

I’ve not had to resort to Lorazapam this week for managing my jaw spasms/dislocations (yet). So far my usual meds and my Dr ordered bandage support, are doing the job along with Damon relocating it when needed. I hadn’t realised just how much the Lorazapam had been affecting me until it started to work its way out my system.

Now this isn’t a surprise. Clonzepam and Diazepam are listed as allergies for me as they cause psychotic reactions when I take them. It seem to be a family of meds I don’t get along with but unfortunately need at some point now and then unless we find a better alternative to turn to. This time it was like someone had extinguished all hope. Even though my Dystonia is well controlled these days, the fact that my Ehlers-Danlos is getting worse seemed unmanageable. Crushing. Uncontrollable.

Now that it’s out of my system I can see how much of an affect it was having. Yes my EDS is on a downwards spiral at the moment, but we’re adapting and I am blessed with a supportive Fiancé and family who are helping me. My life is very much one full of hope and love. It’s helpful that I have my blog to turn to read to myself on bad days.

Botox is on Friday which I’m much looking forward to. I cannot wait to take these bandages off.