Tag: happiness

Posted in Archive, December

Renewed Hope

Posted on by dystoniaandme

Today I had a fantastic conversation with my university, they have decided to give me an extension on my sick leave until next September. They are going to call me again in February to see if my condition has improved.

This has given me so much hope! My dreams of being a midwife are not over! I have just got to continually push my brain/body in an attempt to make a recovery. I am hoping that I shall get there! Time to start revising everything I had already learned as well to refresh my memory!

I am so happy!

 

Posted in Archive, november

Experiment!

Posted on by dystoniaandme

Yesterday I went out to the cinema to see the new James Bond film. I was really excited, yet filled with nerves. The reason for the nerves was that back in August I was diagnosed with Non Epileptic Attack Disorder, my seizures seemed to be triggered by extreme pain, lights being shone directly in to my eyes and flashing lights. Despite the fact that I have not had a seizure in over 5 weeks, I was still worried, after all with the amount of explosions that there are in James Bond films, there was bound to be some flashing lights.

So you can imagine how ecstatic I was, when we got to the end of the film without having any seizures. The flashing lights had merely set my dystonia off, which left me blind for a few minutes. The was yet another huge step forward for me, and has filled me with confidence. It was a very successfully and enjoyable experiment 🙂

 

Posted in Archive, november

On Top Of The World

Posted on by dystoniaandme

Today I have woken up and found myself to be in a great mood, with a huge grin spread across my face! The reason for this is that over the last few weeks I have slowly accomplished more and more. I am feeling pretty proud of myself! When my Dystonia started affecting more of my body, I found myself focusing on all the things I wouldn’t be able to do/ would struggle to do. Yet now as I look back over the last few months, I find that I have managed to do so much more than I ever thought I would be able to.

Though some of these accomplishments may seem small, such as learning to write with my left hand, for me these are huge steps forwards, that fill me with hope. I can now fill out forms with my left hand, I can go out in public and not worry about what people think of me and I can go shopping and try on clothes!!! All these little things reassure me that I can lead a normal life and enjoy it, despite my dystonia. At the end of the day, my dystonia is part of me, but it does not define me. It is my choices and actions that do.

Posted in September

I can smile!

Posted on by dystoniaandme

For the first time since July 22nd I can smile! It takes a bit of effort due to all the botoux but I don’t care!!!

The operation so far is looking like a success! No pain, I can open my mouth, I can chew, my lips are still a tiny bit wonky but I don’t care, it can take a few days to see the full results of the botoux. Having no pain in my face, is the most amazing feeling! Now when my face decides to spasm, its is only my eyes, mouth and nose that spasm, my cheeks stay blissfully still!

I feel so lucky to have been treated by a surgeon who actually understands what Dystonia is, who listens to what you have to say and cares and likes to put some extra amount of botoux in as he finds it has better results! 

So little dystonia alien, I feel like that’s another point to me… I’m catching up. 

 

🙂

Posted in September

I have a treatment date :-)

Posted on by dystoniaandme

After the disappointment of having my last treatment date cancelled, I have finally been given a new date…For tomorrow!! I am extremely happy and excited. Though I am trying to contain the excitement a little bit as my face has developed a new spasm since my lovely surgeon last saw me.

The surgery will consist of my jaw joint being washed out, the jaw wiring being removed and botoux injections being administered to both sides of the jaw. All of this will hopefully mean that I will finally be able to open my mouth, chew, talk properly and no longer have the horrid jaw jaw wiring slicing my cheek open every  few minutes. 

I am a very happy girl.

😀