Tag: snow

Posted in Archive, December 2022

Snowballs and Spasms

Posted on by dystoniaandme

I have loved snow for as long as I can remember. I’m a winter girl. It lights a spark in me like nothing else. My eyes are forever scanning the grey winter skyline in search of signs of an incoming flurry.

It doesn’t matter that the freezing bite in the air adds another layer of pain to my joints, or the kiss of the snow brings on more spasms. All of that is worth the delight in hearing the crunch of the snow, the fits of laughter of my children as they attempt to stay upright (whilst their dad dramatically falls in the snow), watching as they all run ahead in a cascade of ice, snowballs , giggles and shivers. It brings me such happiness.

Our little exploration may have exhausted me, but it was worth every single moment.

Posted in Archive, november

The Weather and My Dystonia

Posted on by dystoniaandme

So it is getting to the time of year I love! The trees are turning beautiful colours, the air is getting cooler which always makes me start hoping for snow, and the shops start displaying amazing Christmas decorations. Just going out and about at this time of year puts a giant smile on my face. However my Dystonia alien has decided that he hates the cold! Every time we venture out into the cold, my Dystonia alien acts up, causing my right arm to spasm and shake violently.

I am therefore putting my foot down. The Dystonia alien may have control of the majority of my body but it shall not take control over my favourite time of year! I want to be able to go out in the snow! When out shopping today with my mum, we invested in some warm/fluffy mittens, and a lovely warm blanket to cover me up with when I am out in my wheelchair. My theory is if I wear loads of layers and cover myself up as much as possible then my body should hopefully not go into spasm.

It shall be another experiment, which hopefully turn out to be just as positive as the last.