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Dystonia and Me

Dysfunctional living to the max

Videos

Wednesday Video Live

Video• Posted on October 14, 2020February 24, 2022 by dystoniaandme

Latest Battle

Video• Posted on November 22, 2015February 24, 2022 by dystoniaandme

Jaw tremor

Video• Posted on August 24, 2013February 24, 2022 by dystoniaandme

Dystonic Jaw Tremor

Video• Posted on June 21, 2013February 24, 2022 by dystoniaandme

New Neck & head spasm.

Video• Posted on May 15, 2013February 24, 2022 by dystoniaandme

TENS Machine in action

Video• Posted on April 25, 2013February 24, 2022 by dystoniaandme

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dystonia and me

dystoniaandme

dystoniaandme

I'm 32 years old, a mother, author, partner, and spoonie. I live alongside Dystonia, POTS, EDS, Osteoarthritis, and a dictionary worth of other diagnoses. This little blog has been set up to help spread awareness and bring light to these conditions and connect warriors with others who can understand each other's experiences.

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Health blogs I recommened

  • Living My Life With Crohns Living life with Crohns disease

Links to inspiring blogs

  • Neuronauts Dystonia Awareness and Advocacy Nonprofit Organisation
  • Blog by Dystonia Muse A humours blog on Dystonia.
  • Blog by Dystonia Sufferer An Insight into living life with both Dystonia and Functional Movement Disorder
  • A blog on Dystonia and behaviour by Divanicio A blog about Dystonia and behaviour
  • Christopher's blog on Dystonia. A blog to help people with Dystonia and to raise awareness.
  • Matt's Blog on Dystonia and Disability A blog by a disability advocate with Dystonia.
  • Pat Brogan's blog on life with Dystonia Raising awareness of Dystonia to help find a cure!
  • Living My Life With Crohns Living life with Crohns disease

Recent Posts

  • A Hospital Stay Gone Wrong August 4, 2025
  • My stance on the Nanowrimo controversy September 5, 2024
  • 12 years of Dystonia July 24, 2024
  • Dystonia Superstar England – Shortlisted May 31, 2024
  • Overcoming Fear – Baby Steps May 20, 2024

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